• August Heart Hero- Kaeli Knapp

    On February 7th, 2018 my husband & I joined the heart family. I was 23 weeks pregnant with our daughter when we were referred to a heart specialist, after a 2-hour ECHO, he told us that our daughter would be born with Tetralogy of Fallot & Pulmonary Atresia and would require numerous surgeries. On May […]

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  • 2020 Auction Ambassador – Paxton Naiditch

    In the summer of 2018, our lives were rocked when we learned our second son, Paxton, had a congenital heart defect (CHD) called Hypoplastic Left Heart Syndrome, or HLHS. At the time Elise was 20 weeks pregnant with him, and we were in the middle of a move from Chicago to Des Moines. Panic and […]

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  • May Heart Angel – In Loving Memory of Evangeline Mally Nawaz – 11.11.18 – 12.14.19

    We went in for our gender and anatomy ultrasound at about 20 weeks and found out we were having a baby girl! The ultrasound tech went on to say how stubborn our baby girl was. Eva would not move into a position that allowed the tech to get a good look at her heart, we […]

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  • April Heart Hero – Max Preston

    Max is a survivor.  He is truly a medical marvel.  I know all heart heroes are, but Max is a truly special case.  His diagnosis is heterotaxy causing right atrial isomerism, unbalanced complete AVSD with left ventricular dominance and right ventricular hypoplasia, transposition of the great arteries, subpulmonary and pulmonary valve stenosis, twin AV node […]

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  • March Heart Angel – In Loving Memory of Jennings Wallace – 8.16.18 – 3.25.19

    Jennings was born via emergency C-section on August 16th, 2 months premature and with a severe heart defect. At 2 days old, he was transferred to a hospital 2 hours away. The focus was to get him up in weight (he was only 2lbs 9oz when he was born) and getting his lungs strong enough […]

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  • February Heart Hero – Haydn Huddleson

    Haydn Elise Huddleson was born April 14, 2016.  There were no complications during the pregnancy or delivery.  She did struggle with bilirubin and had to have a biliblanket for several days.  Her heart rates/pressures were always within normal range in utero and after birth.  Haydn’s pediatrician/cardiologist noticed a slight murmur, but we were told to […]

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  • January Heart Angel – In Loving Memory of Sydney Burke – 3.12.19 – 9.14.19

    Sydney was born on March 12 with Hypoplastic Left Heart Syndrome (HLHS), meaning the left side of her heart did not fully develop.  Her pulmonary veins (bring the blood from the lungs to the heart) were obstructed at birth, which required her to need emergency open heart surgery within the first few hours of her […]

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  • December Heart Hero – Calvin Kroeger

    Calvin was born on a warm fall day in September 2013. It was a very unremarkable pregnancy, and a rather unremarkable delivery. Everything seemed fine with our 9 lb. 14 oz. bundle of joy. He wasn’t eating right away, but no one seemed concerned. However, after 6 hours passed and he still wasn’t able to […]

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  • November Heart Angel – In Loving Memory of Jonathan Lockie – 3.16.11 – 9.12.13

    I’ve always loved a good story.  My kids do, too.  Especially Jonathan. I remember the first time I got to hold Jonathan.  I can’t pinpoint those early moments quite as clearly with his siblings, but I clearly remember holding Jonathan.  It was days after he was born, just before his first open heart surgery.  He […]

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  • 2019 Superhero Heart Run Ambassador – Charlie Strand

    Charlie’s Journey – The Best is Yet to Come…. Written by Staci Strand, Charlie’s mother Sometimes the simplest of sayings, while you may not know it at the time, have different meanings each time it is brought into focus.  There’s a lot packed into a simple phrase like, The Best is Yet to Come.   […]

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