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October ~ Pregnancy & Infant Loss Awareness Month
October is Pregnancy & Infant Loss Awareness Month. Unfortunately, this is a road many of our heart families are forced to walk. Our co-founder, Melissa Hooper, lost her son Dylan on June 30, 2008, at the age of 3. Because of her personal experience, we started the annual Dylan’s Dragon Walk as an event to […]
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2018 Superhero Heart Run Ambassador ~ Zion Svoboda
Zion was born 11/26/14 with Tetralogy of Fallot (TOF). He was undiagnosed until 2 weeks after birth. It’s no surprise that when these things happen, you are in shock. We were feeling all sorts of worry and stress, fear and anxiousness. Not too long after we put word out about Zion’s heart, we were contacted […]
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It’s Not How Fast You Run That Makes the Race Good, It’s the Love Along the Way
written by Shannon Boyd, Hudson’s mom (originally posted on Heart Heroes‘ blog, reposted with permission) That’s me, the mom crouched down on the bottom left with the headband. That’s my kid, Hudson, running. We went to the Des Moines Superhero Heart Run last year, hoping he would like being surrounded by other kids with special hearts. Or […]
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Dear Me Blog Series: Emily Graber
Dear Me, There are days that you will never, ever forget. Today was one of those days. Today will forever be a before and an after for you. You sat in a doctor’s office and heard the words ‘congenital heart defect’ and your unborn child in the same sentence. You fought tears as you tried to […]
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Dear Me Blog Series: Tiffany Corey (CHD Adult)
Dear Younger me, I have so many things I’d like to tell you and I honestly don’t know where to start. You were born with a congenital heart defect. That much you know. Heart problems, I am sorry to say, will continue to always be a part of your life. Medications, doctors’ offices, all of […]
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Dear Me Blog Series: Kate Simpson
Dear me, Just breathe! Slow down, and breathe. You didn’t plan for this. You weren’t ready for this, but I wish I could tell you to soak in everything to come…and just breathe! Today you had a baby. A beautiful baby girl who wasn’t supposed to be here for 3 more weeks. You didn’t understand […]
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Dear Me Blog Series: Michelle Pfantz
Dear Me- Though Your Heart Breaks, Noah Will Forever Keep It Whole, The one thing you KNEW you wanted to be when you grew up was a mom, seven years down the road it is the only thing you KNOW you’re meant to do. Noah’s miraculous deformed heart will grow you as a Christian and […]
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Dear Me Blog Series: Wendy Meyer
Dear Me, I want you to know that everything will be alright! You will have an amazing heart warrior that will touch the lives of so many people and it will change you forever! I know you thought being a stay at home mom was super easy with one child, but life is going to […]
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Dear Me Blog Series: Zachary Svoboda
Dear Me: I know that you had no idea, no inclination, no worry at all when Zion came into the world- that there might be a problem with his heart. But today you found out the truth. Today you found out that the road ahead could get windy and rough, with lots of hills and […]
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Dear Me Blog Series: Holly Messenger
Dear Mama, Here is what I want you to know: You. Can. Do. This. There will be days you don’t want to. There will be days the fear of the tasks before you paralyzes you. There will be days you want to scream, but you will hold it in. There will be days you will […]
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